The past couple of weeks have gone well overall. Dad has been very tired and we think (hope) it's a result of lowering his dose of steroids. We think he may be having some headaches, but he doesn't communicate how he is feeling to us so we have to almost trick him in to disclosing headaches, auras, etc. We go by his behavior and try to decipher based on that if we need to ask different questions.
He has also had bouts of forgetfulness and odd behavior overall. I can
only imagine how boring and frustrating it must be for him to be stuck
hanging around the house or tied to someone else's schedule when he
wants to go somewhere.
Dad had a follow up MRI today to check the tumor and determine what type
of progress we have made. Again, there is some chance of pseudo
progression being so close to final radiation, but hopefully we can get a
good idea of where we stand.
This past weekend we were able to spend some good quality time with mom
and dad as a family. Mark and Wendy came in town, our cousins Chris and
Marvin were in town, and we all went down to Como to just get away from
everything and relax.
We fished in the lake, rode the mule around the property, had great
breakfasts and dinners at the cabin and enjoyed each other's company
without appointments or having to watch the time to be anywhere. It was
more evident that dad seems to be confused a bit more, but the time
relaxing seems to have helped with that a little.
It's hard to relax when you are watching your dad's every move and
trying to make sure he is ok, no new pain, that he isn't lost in his own
mind, and that he is content overall.
Friday was also mom's birthday. Following in Bolding family tradition,
Katherine made sure we had "Happy Birthday" banners hung around the
cabin for mom, Martin brought flowers, candy, and a card, and Wendy had a
cake. We really wanted mom to be able to relax as well.
We had an Easter egg hunt for the girls down at Como on Saturday. The
littles had never really done an Easter egg hunt, so Annabelle in
particular was extremely excited about finding ALL of the eggs. She even
dumped her sisters' buckets in to her own so she could have "lots and
lots of jelly beans."
On Sunday, we had a great family gathering at church for the service,
and then went to the Crenshaw's (Wendy's family) for lunch. We loved
seeing Molly, (little) Lucia, and Joe! It's a rare treat for all of the
Crenshaw sisters to be home together and we loved spending time with all
of them. Hal and Lucia have been such wonderful extended family and
such a support locally, on behalf of Wendy, to my parents. They are such
an amazingly sweet and generous family with the biggest hearts you
could imagine. They have embraced all of our family, not just Marky and
our parents, and we are so fortunate to have such kind people in our
lives and "family."
Because of the increased confusion and general temperament shift, I have
asked if we could get an "unofficial reading" on the MRI, but we will
see what Dr. Weir says tomorrow.
Dad's sister is in town from Vicksburg and will be dad's personal
chauffeur this week. I think we need a chauffeur/buddy for dad each week
during the times which mom is at work. lol.
By the end of this week, dad should have the MRI results, be set up to
begin the Optune cap, and be prepared to begin his first 5/23 of double
Thank you for your continued prayers and support. The dinners have been
much appreciated as that is one of the only times all 6-8 of us sit
together to eat.
Please pray that the MRI shows promise and we will be able to continue
on the right track of stability and hopefully progression!